Pots Syndrome - Blog Posts

okay random question do any other people w/ POTS have their legs randomly collapse under them and they fall to the ground, or do I need to get checked out for something else-

what if Dipper had POTS? Like, exercising is so much more exhausting for him, but he doesn't even know it's not supposed to be that exhausting.

He's self-conscious about not being strong enough and not performing well in gym class, and the fact that he can't run around as much during summer, not realizing that he has POTS

Hey gang, I learned this cool fact so you don’t have to:

If you have POTs and you’re getting a filling or anything that requires a local anesthetic— ask them if it contains epinephrine

Epinephrine, ie—adrenaline—DOES NOT MIX WITH POTS

It’s not common knowledge for most dentists and doctors so give them a heads up so you can get an alternative

Bc the result is the worst POTs flare ever….trust me

My bpm went from 95 to 165 after the injection and it was NOT a cool, chill time

In conclusion:

POTs + epinephrine = NOT A FUN TIME

Having pots is crazy bc I’ll be sitting in the ER with a bpm of 160, just chilling, occasionally slumping over and losing control of motor skills but then going right back to joking—

MEANWHILE the nurses look at me like

When I said I needed pots, THIS WASN’T WHAT I MEANT

Does ANYBODY with pots have any tips on how to make some kind of progress with exercise, or at least not be completely out of spoons after? I miss running sm, and it's driving me crazy

Hi, me and my fiance are trying to raise money for a mobility aid for them, as they have pots and other medical issues leading to issues walking and it would be so helpful, if anyone can spare anything it would be a lifesaver! Our cashapp is $hatimoonchaser

Dizzy Reassurances - Leah Williamson

Leah Williamson x Fem!POTS!Reader

Summary: While attending a wedding with your girlfriend you get dizzy and end up fainting. But Leah know exactly what to do.

Warnings: Fainting!

Authors Note: Hey guys so im very sorry if I did something wrong in this I don't know much about POTS! so if its wrong forgive me!

You and your girlfriend were sat at a wedding reception attending one of your high school friends wedding.

You and Leah were matching, her in a grey suit and you in a grey dress.

Earlier in the wedding ceremony you started to feel dizzy, but it went away when the crowd was sat and vows were spoken.

"You alright?" Leah whispered to you when you both were sat and the bride walked up.

You turn to look to Leah and give her a smile. "Yeah, I'm okay."

Looking into Leahs eyes I can tell she doesn't believe me but nods and looks forward to the ceremony.

-

"Do you want something to eat, love?" Leah turns to you when the first dance is over and grabs your hand.

"Babe?" She asks when she doesn't get an answer from you, looking at the gazed over expression on your face she knows what's happening.

She looks around before grabbing your shoulders and pulling you into her chest, turning your face away from the crowd and into her neck, holding you tightly against her.

When she feels your dead weight on her she starts rubbing circles on your back to coax you back to consciousness.

The bride walks over and sees you on her chest and gets concerned.

"Hey Leah! So glad you and her could make it, is everything okay?" The bride asks, looking at you in concern.

Leah looks down of you and nods. "Yeah, is there by chance a couch or private room somewhere?" Leah keeps her voice low to not make a scene.

The woman nods and points to the bridal suite and gives them permission so go in there and lay you down.

-

"What happened?" You wake up confused of where you are, Leah is on the couch next to you because she gave you the entire couch to lay on, good thing there were 3.

"You just passed out babe, its okay were laying down for a moment okay?" She grabs your hand from her seat.

"I'm sorry." You apologize and Leah is quick to stop you.

"Hey no, you could control it its okay love." She leans over to kiss your forehead and then your lips. You both lay there for a few minutes discussing the decorations and the dresses before leaving and joining the reception once again.

Like and reblogs are appreciated!!

So excited to have a flare up during my EOC exam tomorrow and not being allowed to have any of my diy treatments because the school refuses to accommodate me, so fun!!! /src

But seriously I had a flare up in the middle of my SAT and it caused me to not be able to finish a section due to incoherency and pain. Literally just let me have my salty beverage…..

Nothing like your hip hyper extending and limping to make you feel like Remus Lupin. ✌🏻

I have daily floor time. I only cry when I choose to, and I only shake when the POTS refuses to release its grip on me.

obsessed with the girl who says that if you lie on the floor long enough you will start to cry and shake because your body is 'releasing excess cortisol' like i just think you might be going through something girl

Having POTS sucks but at least when I’m laying on my back in bed unable to get up because I just took a shower and my brain is fucked my chest feels flat

Also the ribbon is the same color as Perry the Platypus

All I need now is a fedora

Being neurodivergent and chronically ill is crazy because you already have issues with executive functions and then your body hinders you even more. AND your sensory issues are heightened by the pain you feel.

good luck with a second cardiologist appointment. I have only done the nasa lean test but got a diagnosis of pots through it. the instructions tell you to avoid excess salt and water 12-24 hours beforehand.

don't do this but i will also avoid taking painkillers before going to a doctor so that i will be crabby and exhausted and sore because i look fine when i'm coping

Its weird I made the same post about purposely making my symptoms worse on Reddit and it got taken down. You're not really supposed to talk about that. Its understandable but idk how else to get my doctors to take me seriously. And thank you! I hope it goes well too apparently they're a really good doctor

WORK IN PROGRESS

Represents my chest pain and rapid heart rate

title-: Heart Palpitations

If my doctors aren’t gonna take me seriously I’m going to make them

I went to a cardiologist, and he didn’t take me seriously at all. I got an off vibe from him. I asked the nurses, the receptionist, and my primary care doctor for a tilt table test. My cardiologist said no to getting me a TTT, all because I got better with water and salt intake (almost as if I have POTS???)

After bawling my eyes out m called a different cardiologist and hopefully they’ll actually listen to me. I just want a diagnosis so I can move on. I feel crazy.

My plan is to purposely decrease my salt and water intake so they take me seriously when I finally get a tilt table test. I’m ready to take drastic measures to be taken seriously

Call me a gymnast cause I am jumping through hoops trying to get a diagnosis

Digital Detox Helping With Chronic Illness

I did what I like to call a "digital detox" by limiting 90% of the apps I could use on my phone, especially social media. I do this because I find so much negativity in the community. Trust me when I say I know being chronically is hard. But there is no reason any of us need a 24/7 reminder of it.

I also find it difficult when I'm stuck at home for a good majority of my days, with no work, it's hard to keep myseld entertained all day. I end up relying on my phone and I get incredibly sad in the process.

As some of you may know if you watch my YouTube, I was off social media for 7 months. I found it beneficial. While I'm ready to be back on social media, I needed a break

So I only used my phone to film my journey, listened, to music, and text two people. My time spent on my phone was half of what it usually was (really just using the camera app.)

Would you be interested in me uploading to my YouTube channel my journey of a digital detox while living with a chronic illness? Should I do this more often? Would you consider doing this?

UPDATE!

I had to reupload my video due to accidentally adding copy right music (´°̥̥̥̥̥̥̥̥ω°̥̥̥̥̥̥̥̥｀)

I was so exhausted and has zero spoons left. Tookna three hour trip to snooze land. Probably shouldn't have taken that long of a nap, but you know what? I DESERVED THE DAMN NAP!!!! I might still be tire, but I'm feeling refreshed of spoons today.

If you need to rest go do it. No need to feel guilty about it

New to pots? Need some advice on managing symptons? Stay posted for my new vid coming out May 13 at 6:00 Eastern Time

Signs you're getting better that are NOT symptomatic | Chronic Illness Addition

You're adapting: Instead of pushing yourself past your limits, you learn ways to make your life with chronic illness just a little easier. It could be sitting while you beush your teeth, or opting for a bath instead of s shower.

You stop telling yourseld you "aren't disabled enough:" Maybe you're an ambulatory wheel chair user or you don't always need a cane to walk around. Stop telling yourself that just because your chronic Illness differs from day to day, means you aren't disabled enough. Go buy that cane or walker and use it when you need to. You don't need anyone's permission. You don't need to prove anything to anyone

You've learned to ask for help: I know we all want to be independent and not rely on other people for help. But even able body people need help from time to time. Our body function differently, and it's okay to need extra help than the average person. You're not a burden.

You priorities your mental health: Mental health is extremely important especially when dealing with chronic illness. You may be grieving your old body or experiencing jealousy. This is all normal. Ways that have healped my mental health tremendously are making a gratitude list to remind me what I'm grateful for, creating a schedule, and minimizing the time on my phone.

Please feel free to add to the list

HAPPY CHRONIC ILLNESS NEWS

Im so excited to say that after two months of having days that were an absolute roller coaster, I finally had a good day. A true good one. I don't mean my usual days where there is a sprinkle of good in a scoop of bad ice cream.

I usually spend my days doom scrolling, bored, and napping.

But my therapist and I came up with a plan to write down everything I do. This way I can create a schedule. I filled my day with low effort activities and rested. I drew, colored, did my makeup, did a graditude list, meditated. I'm so happy to prove to myself I in fact CAN have good days despite my illness

I wish everyone a good day with lots of rest

I'm trying to create a more positive and content place for disabled and chronically ill people. I see so many negative posts about being chronically ill and they can really put me down. I wanna change that

I'd love to ask the question, what are you grateful for?

Now, I know this can be SO hard to answer especially when you're chronically ill. But I really want you to try and think of at least one thing. It could be something really small. Or even a list!

I'll go first: I'm grateful for my ability to create art, my mobility aids, and my chosen family.

YOUR TURN!

ROUGH DRAFT chronic illness and insomnia

You can't sleep lying on a nail bed. The spikes digging into you. If you lay properly, it distributes all your weight. One wrong move and you're in agonizing pain. You roll around all night, trying to get one minute of rest.

You wake up after trying to sleep for hours. They ask you why you're so tired. No one sees the spiked bed, only you.

I'm not at all saying people can't vent or complain about being disabled and chronically ill. I do it all the time. What we go through is beyond difficult

But I'm on my phone a lot cause I don't have the spoons for anything else. I'm always seeing posts about how horrible it is to be chronically ill. It's constant reminder. Its like picking at a wound never meant to heal in the first place. Sometimes I see more positive posts, but they are few and far between. I should make an effort to post some more positive content.

I feel so much better adding these to my drinks. May have more energy and can walk easier. But I feel better not amazing and cured. Why am I not cured? 🤨 I was told water and exercise is gonna cure me /sar

No but seriously I recommend these they’re great

Just had to pay a thousand dollars of medical debt…

I spent a third of my savings, I can’t get a job because of my disability. I haven’t gotten a diagnosis. And if i want a diagnosis I gotta keep fucking pay off medical debt. And no getting paid disability till I get a diagnosis. THE AMERICAN HEALTH CARE IS ABSOLUTELY FUCKED

People act like we CHOSE to be disabled. That we CHOSE to not be able to hold a job, or not be able to take care of ourselves.

All I gotta say at this point is

I am absolutely PISSED

I am homeless, disabled, and trying to find housing. I don't qualify since I don't have a I have no income. I asked my social worker about finding housing if my gf lives with me but she doesn't make enough. I asked about getting disability once I receive a proper diagnosis, and I got a MAYBE. Not to mention, I'm so appalled after learning how much disabled people earn in one month. The government wants you to be homeless when you're disabled, and then punsihes you for it.

Last birthday post!