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Hypermobilty Syndrome - Blog Posts

4 months ago

I hate being hypermobile so much, I am constantly in pain for no reason other than that my joints are just weird. I’m about to go to college I want to experience life without pain debilitating me constantly. And what’s worse is none of my doctors seemingly care, I’m just so tired I wish I could heal my body so it isn’t collapsing under me.


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2 years ago

It is okay if you do not do better tomorrow than you did today. It is okay if you do worse tomorrow than you did today.

If you have made it through the day, that is enough. It doesn't matter if it's been less productive than you wanted, sometimes all you can do is get through the day. And that is okay, even when it feels bad, especially when you used to be able to do things.

It is okay for you to get worse, it does not reflect on you as a person.

Sometimes things aren’t going to get better

If you have a chronic illness or a disability, and that’s going to be with you forever

So sometimes things don’t get better, but that’s okay

Sometimes what you need to do is work on managing things instead of trying to see how the situation could be better or worse, and that’s okay


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1 year ago

Yo I also have over pronated ankles and wear insoles and hypermobile eds, but I have been wearing these insoles for a decade and I was only diagnosed with eds earlier this year. And they’re custom insoles from like a military doctor because of how messed up my ankles are cause they normally only do those for veterans and not dependents.

How did it take this long for me to be diagnosed?!?!?

I’ve been unable to get the insoles I have been using for years and went with a “recommended brand”.

Of course I spent a whole month trying to keep my knee in place before it occured to me that the new insoles were not doing their job.

Anyway, I now recommend PCSsole Heavy Duty Arch supports for over pronation, because I can walk again.


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2 years ago

So I only got diagnosed last week right? I’ve been in pain for years but I never had a name for it that explained the extreme it would go to.

Well today I was walking around with some of my friends getting ready for the show we are putting on and I open the door for them and right after they walk in my hip shoots pain and I hit the deck, unable to get up because of pain.

I don’t know wtf happened, but my hip has hurt ever since regardless of position, sitting, standing, laying

So the prop department is lending me a cane, but can anyone tell me what could possibly have happened?


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2 weeks ago

Being neurodivergent and chronically ill is crazy because you already have issues with executive functions and then your body hinders you even more. AND your sensory issues are heightened by the pain you feel.


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